This 11-year-old has battled a rare disease for years — a breakthrough drug helped deliver relief
In 2016, when Susannah Rosen was 2½ years old, her parents, Luke Rosen and Sally Jackson, noticed during bath time that something wasn’t right. When Sally prompted Susannah to playfully kick her legs in the water, she wasn’t able to. “For our first kid, if it was a bee sting, we would run into the…